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On 14 October 2009, cancer program representatives and cancer registry representatives from Argentina, Barbados, Belize, the Cayman Islands, Chile, Colombia, Costa Rica, Cuba, the Dominican Republic, Ecuador, Guatemala, Jamaica, Mexico, Nicaragua, Peru and Uruguay issued the Brasilia Statement on Improving Cancer Information.

Rationale

The Brasilia Statement on Improving Cancer Information was based on the WHO and PAHO resolutions for Cancer Prevention and Control. It bases its call for action in recognition that cancer is preventable and the risk factor for many cancers are already known. Additionally, these were drafted with the support offered by international organizations, public and private institutions, academic institutions and NGOs.

Purpose

The purpose of the statement was to urge governments to:

 

Develop new or strengthen existing information systems to provide or   include population-based data for different types of cancer, which will inform decision-makers in priority setting and implementation or enhancement of comprehensive cancer control programs.

 

Recognize cancer registries as part of the integrated national health information system.

 

Ensure cancer registry access to disaggregated mortality data from the national statistics bureau, including personal identifiers, while ensuring confidentiality.

 

Encourage policies that secure resources for sustaining the quality, timeliness and completeness of cancer data.

 

Engage multiple stakeholders as advocates for the importance of up-to-date cancer data/information and as the disseminators of cancer information.

 

Provide leadership support, including support for capacity building in cancer registration, data analysis and dissemination of information.

 

Support the use of technology in cancer registration, for both registry quality control and dissemination of information.

 

Encourage scientific research related to improvement of tools and resources that will support better information on cancer, evaluation of cancer registries, and the cost-effectiveness and guidance of interventions within cancer programs. 

 

Ensure appropriate and accurate access to information on cancer patients in all settings: hospitals, private clinics, laboratories, social security, etc.

 

Ensure access to appropriate information on cancer by different sectors of the public, by establishing channels for dissemination of that information.

 

Plan the placement, number and coverage of population-based cancer registries by using public health criteria and existing technical and financial capacities.

 

Last Updated on Wednesday, 09 June 2010 08:29

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