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Active ImageDevelopmental disorders involve teeth and the craniofacial structures. Oftentimes, these are associated with genetic disorders affecting other parts of the body. Other times, they are due to developmental problems during birth. Thus, it is suggested that both genes and environmental factors play a role in these defects. The most common defect is the cleft lip and palate.

This section will provide information on many of the common developmental disorders in the LAC region, scientific literature and links to associations and foundations that are working to help those inflicted.


Introduction and Fact Sheets

International Collaborative Research on Craniofacial Anomalies

WHO. Introduction to Craniofacial Anomalies

Cleft Lip and Palate

NIH.  Brief introduction to Cleft Lip and Palate (also called Harelip).

El labio leporino (fisura labial) y el paladar hendido (fisura palatina)

The Nemours Foundation. Introducción incluyendo información sobre causas, complicaciones y tratamento.

Treacher Collins Syndrome, Crouzon Syndrome, Apert Syndrome, Stickler syndrome 

NIH Genetics Home Reference.  Introductory information these developmental disorders.

Global Strategies to Reduce the Health Care Burden of Craniofacial Anomalies: Report of WHO Meetings on International Collaborative Research on Craniofacial Anomalies  (57.19 kB) 

WHO, 2002. Discussion on potential of the global model for tackling the big questions in craniofacial anomalies, be they concerned with cause, treatment, or prevention.


Scientific and Technical Publications

Advice Given to Women in Argentina about Breast-feeding and the Use of Alcohol (90.72 kB)

Panamerican Journal of Public Health, 2004. Study demonstrating the need for professional development strategies that will address women’s awareness of the risks of alcohol consumption and alcohol usage.

 

Global Strategies to Reduce the Healthcare Burden of Craniofacial Anomalies (1.99 MB)  

WHO, 2002. Report of WHO meetings on International Collaborative Research on Craniofacial Anomalies Geneva, Switzerland, 5-8 November 2000 & Park City, Utah, USA, 24-26 May 2001. Findings from WHO five-year project designed to take forward an international research strategy on treatment, gene/environment interaction, genetics, and prevention of craniofacial anomalies.

University of Iowa Craniofacial Center Collaboratoy

The purpose of this site is to aid in disseminating information about research currently being conducted at The University of Iowa in the area of craniofacial anomalies.


Training Materials                                                               

Guidelines for Identifying and Referring Persons with Fetal Alcohol Syndrome

CDC Morbidity and Mortality Weekly Report, 2005. Recommendations, referral considerations, services for people with FAS, alcohol during pregnancy. 


Additional Resources:

Sources - Database:

General Health Sicience: LILACS, MEDLINE /International Agencies:  PAHO- Pan American Health Organization, WHOLIS - World Health Organization / Cochrane Library: Cochrane systematic reiews, Protocols of Cochrane systematic reviews, CENTRAL, Abstracts by INAHTA, economic studies and critically appraised, abstracts of quality assessments / BBO -Brazilian Dentistry Bibliography  / MEDCARIB - Caribbean Health Sciences Literature / Bandolier / Ibero-American Clinical Trials, Evidence. Updating in ambulatory, Reports / HIL- Internet Resources.


Foundations and Centers:    

International Centre for Birth Defects (ICBD) is the coordinating centre of the International Clearinghouse for Birth Defects Monitoring Systems (ICBDMS). The ICBD collects and analyses data from ICBDMS registries to systematically monitor congenital malformations.

Austin Smiles is a nonprofit 501(c)3 organization which provides reconstructive plastic surgery, primarily cleft lip and palate repairs, to the children of Austin and the 10 county area surrounding Austin and in various locations in Latin America.

The mission of CPF is to provide the essential information and research that enhances the quality of life for individuals affected by cleft lip and palate and other facial birth defects.

La Fundación del Paladar Hendido (CPF) es una organización sin fines de lucro dedicada a ayudar las personas con defectos de la cabeza y el cuello, y sus familias.

For  38 years, FACES: The National Craniofacial Association has been dedicated to assisting children and adults who have craniofacial disorders resulting from disease, accident, or birth.

Empowers and gives hope to individual and families with facial differences. 

The website for the Collaboration for Craniofacial Development and Disorders (CCDD) was created for families, physicians, and scientists. The mission is to care for patients, educate, and perform research on craniofacial disorders. Information is provided about services available at Johns Hopkins University and providers around the world.

Madisons Foundation is dedicated to improving the quality and quantity of information available to parents of children with rare, life-threatening diseases, and to facilitating effective communication among parents, physicians and medical experts.  

Oral Health, Clinical Trials, Research, Grants & Funding, Careers & Training

Basic information on Cleft Lip and Cleft Palate for kids.

Operation Smile mobilizes a world of generous hearts to heal children’s smiles and transform lives across the globe. Our network of volunteers works worldwide to repair childhood facial deformities including cleft lips and cleft palates.

Operation Rainbow is dedicated to performing free orthopedic surgery for indigent children and young adults worldwide.

Nossa missão, além da correção estética, funcional e emocional é de prover uma oportunidade e um ambiente especial de trabalho, onde as pessoas com deformidades faciais e dificuldades especiais adquiram experiência de trabalho, confiança e auto-estima para poderem enfrentar dignamente o competitivo mercado de trabalho.

The Center specializes in the evaluation and treatment of patients of all ages with craniofacial deformities. Its services cover a broad range of reconstructive operations for the treatment of deformities of the face and skull resulting from birth defects, tumors, and trauma.

Central database of links to more information. 

Regional Office for the Americas of the World Health Organization
525 Twenty-third Street, N.W., Washington, D.C. 20037, United States of America
Tel.: +1 (202) 974-3000 Fax: +1 (202) 974-3663

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