Project in San Carlos de Bariloche, Argentina, implements registry, epidemiology and evaluation of information systems strategies and support for caregivers of cancer patients

In 2010, with the creation of the National Cancer Institute (INC), Argentina established the SIVER-Ca. One of its components is the national registry of hospital-based cancer called the Institutional Registry of Tumors of Argentina, or RITA. It is an information system, centralized in the INC, which collects data on a web platform and stores them in relational databases. The system is longitudinal and structured. These related bases correspond to: data of the institution, sociodemographic (of the patients), of the tumor and clinical data of treatment and follow-up until discharge or death of the cases.

Hospital Zonal Bariloche building

The Bariloche Zonal Hospital is the head hospital of the Andean-Patagonian region of the province of Río Negro, and serves approximately 60% of the population of the region.

In the province of Río Negro, there were no institutions affiliated with the RITA, until in May 2018 the Institute of Nuclear Technologies for Health (INTECNUS) was incorporated into the registry.

The Bariloche Regional University Center, National University of Comahue, is executing a project to coordinate the implementation of institutional cancer registries in San Carlos de Bariloche, within the framework of RITA.

This project (one of the winners of the call for proposals for the implementation of IS4H projects promoted by the Pan American Health Organization) aims to incorporate the Bariloche Zonal Hospital (HZB) to RITA. The HZB is the head hospital of the Andean-Patagonian region of the province of Río Negro, and serves approximately 60% of the population of the region. The incorporation of the other health institutions will also be organized, in order to achieve a complete registry of cancer cases in the region.

RITA will allow the assessment of survival and other health indicators and their association with characteristics of care. Disparities between institutions in different parts of the country or between the population of Bariloche and the small towns and rural areas of the region will support and guide the development of disease control programs and will lay the foundations for the development of cancer research, stimulating the interaction between the health system and the academic environment of the locality.

This proposal will require the training of personnel for the registry and in the area of ​​epidemiological investigation. Informal caregivers of cancer patients usually do not have the necessary information and support. If your needs are not addressed, the task can have an impact on your health.

The main needs perceived by caregivers of cancer patients will be analyzed and support strategies will be sought through Facebook, forums or telephone coordinating the interaction of the National Cancer Institute, the nursing career of the UN Comahue, the HZB, INTECNUS and NGOs and support groups for cancer patients in Bariloche.