Overcoming Fear
Camila says that understanding everything changed her relationship with fear. “I understood better what I had. The book explains it in a clearer way than sometimes a doctor can, and that helped me be less afraid of the treatments.”
For two years, Camila underwent leukemia treatment at Hospital Bloom, a national referral center for specialized pediatric care. It meant months of hospital stays, chemotherapy, and medical tests. Some days were especially difficult.
“When it was my last chemo, I was nervous because they were going to do a bone marrow aspiration and I didn’t know what the result would be. I threw up breakfast and felt nauseous from early in the morning. The symptoms lasted longer than usual, almost a week.”
In those hard moments, she found comfort in what she loves: coloring, doing crafts, and resting, and at home, with her Siamese cat, Capuchino. “He slept with me when I felt sick. He was my support.”
Her mother, Marta Eugenia de Navarrete, also learned something along the way: “That each child is unique and that each body responds to treatment differently. Knowing that helped sustain me, because the doctors and psychologists emphasized that I should not compare my daughter to other children, even if they had the same disease.”
In El Salvador, Emely’s Suitcase was integrated into the pediatric oncology care model with training for doctors, psychologists, nurses, and volunteers. The impact has been tangible: more than 500 children and adolescents have directly benefited, and treatment abandonment rates have remained below 1%—a significant achievement in contexts where fear and misinformation can disrupt continuity of care.
Today, Camila is about to turn 15 and is busy with the life of a teenager. She loves designing dresses and outfits and dreams of becoming a fashion designer. In the short term, her wish is simple and profound: “To finish school without problems, to stay well, and not relapse.”
What began in El Salvador, driven by PAHO’s country office together with Ayúdame a Vivir, is now an adaptable regional resource for countries across Latin America and the Caribbean. Thanks to this initiative, more children and adolescents, like Camila, can go through their treatment with clear information, reassurance, and support. Because understanding, drawing, and naming fear is the first step toward transforming it into hope.
Links
— Emely’s Suitcase (en español) – Project to promote adherence to childhood cancer treatment
— Virtual course on early diagnosis of cancer in children and adolescents